Important Information for Patients about Sharing Information

Introduction

Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.

It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so we can see what has worked best.

Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then be used by others, such as researchers and those planning health services, to make sure we provide the best care possible for everyone.

How your information is used and shared is controlled by law and strict rules are in place to protect your privacy.

We need to make sure that you know this is happening and the choices you have.

 

Please take time to read this leaflet. You need to make a choice.

Benefits of sharing information

Sharing information can help improve understanding, locally and nationally, of the most important health needs and the quality of the treatment and care provided by local health services. It may also help researchers by supporting studies that identify patterns in diseases, responses to different treatments and potential solutions.

Information will also help to:

• find more effective ways of preventing, treating and managing illnesses;

• guide local decisions about changes that are needed to respond to the needs of local patients;

• support public health by anticipating risks of particular diseases and conditions, and help us to take action to prevent problems;

• improve the public’s understanding of the outcomes of care, giving them confidence in health and care services; and

• guide decisions about how to manage NHS resources fairly so that they can best support the treatment and management of illness for the benefit of patients.

What will we do with the information?

We will only use the minimum amount of information we need to help us improve patient care and the services we provide.

We have developed a thorough process that must be followed before any information can be shared. We sometimes release information to approved researchers, if this is allowed under the strict rules in place to protect your privacy. We are very careful with the information and we follow strict rules about how it is stored and used.

We will make sure that the way we use information is in line with the law, national guidance and best practice. Reports that we publish will never identify a particular person.

Do I have a choice?

Yes. You have the right to prevent confidential information about you from being shared or used for any purpose other than providing your care, except in special circumstances. If you do not want information that identifies you to be shared outside your GP practice, ask your practice to make a note of this in your medical record. This will prevent your confidential information being used other than where necessary by law, (for example, if there is a public health emergency).

You will also be able to restrict the use of information held by other places you receive care, such as hospitals and community services. You should let your GP know if you want to restrict the use of this information.

Your choice will not affect the care you receive.

Do I need to do anything?

If you are happy for your information to be shared you do not need to do anything. There is no form to fill in and nothing to sign and you can change your mind at any time.

If you have concerns or are not happy for your information to be shared, speak to your GP practice.

Where can I get more information?

Leaflets in other languages and formats are available from our website.

For more information, including a list of frequently asked questions (FAQs), please go to the website at www.nhs.uk/caredata.

You can also get further information from the website at www.hscic.gov.uk.

Or you can speak to staff at your GP practice.

IMPORTANT INFORMATION

 

PLEASE READ THE FOLLOWING INFORMATION PROVIDED BELOW

AND THE INFORMATION LEAFLET ON FREQUENTLY ASKED QUESTIONS

 

THIS CONCERNS YOU

 

 

NHS England is commissioning a modern data service from the Health and Social Care Information Centre (HSCIC) on behalf of the entire health and social care system. Known as care.data, this programme will build on the existing data services such as the Hospital Episodes Statistics (HES) service, which was launched in 1989, and expand it to provide linked data, that will eventually cover all care settings, both in and outside of hospital.

 

Episodes Statistics (HES) service, which was launched in 1989, and expand it to provide linked data, that will eventually cover all care settings, both in and outside of hospital.

Under the Health and Social Care Act 2012, NHS England has the power to direct the HSCIC to collect information from all providers of NHS care, including general practices. The specification of the data to be extracted by GP practices were considered by the Joint GP IT Committee of the British Medical Association and the Royal College of General Practitioners, as well as an independent advisory group.

 

The General Practice Extraction Service (GPES) will be used to extract GP data each month. Initially the data will cover the period from April 2013 onwards. The identifiers to be extracted are: NHS number, date of birth, postcode, and gender which will allow patients’ GP data to be linked to their hospital data. No free text will be extracted, only coded information about referrals, NHS prescriptions and other clinical data.

 

Upon receipt of receiving your letter, which is being sent out sometime in Janury 2014 the Practice will have approximately 8 weeks to make our patients aware before the Health and Social Care Information Centre (HSCIC) will begin extracting data via the GP Extraction Service (GPES) for those patients who have not objected.

 

During this time it is important to make you aware of what is happening and give you the opportunity to object to this extraction.

 

Please feel free to ask any of our reception staff they will be able to respond to any queries or concerns you may have.  Please take time to read the frequently asked questions.

 

Please remember you have the right to object to your data being extracted and shared with other professionals.  You must let our reception team know if you do object.  This will be recorded on to your records. 

 

This will then block any information being extracted from your records.

 

IF YOU HAVE ANY QUESTIONS OR CONCERNS PLEASE CONTACT THE SURGERY WHERE YOUR QUESTIONS OR CONCERNS WILL BE ANSWERED BY ONE OF OUR ADMINISTRATIVE TEAM.

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